Advancing the Rare Brain Disease Ecosystem

Organised by the European Brain Council, the event Advancing the Rare Brain Disease Ecosystem will bring together experts from research, clinical care, patient advocacy and industry to share perspectives and priorities on rare brain disease research, care, and policy. 

Throughout the day, experts will engage in focused discussions to review key regulatory developments shaping rare brain disease policy in Europe, discuss strategies to advance the Rare Brain Disease Ecosystem and develop a comprehensive Knowledge Hub, and explore improved care pathways for conditions including Myasthenia Gravis, Neurofibromatosis Type 1, and Childhood Dementia. These conversations will draw on both patient and clinician perspectives to identify practical strategies for enhancing diagnosis, treatment and overall care experiences.