High-Level Meeting on a European research and innovation ecosystem for rare diseases

The High-Level Meeting on a European research and innovation ecosystem for rare diseases will take place on 9-11 December 2025, in Brussels. Organised by Brains for Brain, this three-day event will gather key stakeholders, including EU policymakers, industry leaders, patient advocacy groups, researchers, and healthcare providers. 

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This event is co-funded by the EU4Health programme, managed by the European Health and Digital Executive Agency (HaDEA).