European Reference Network for rare respiratory diseases ERN-LUNG is a network of European patients and healthcare providers dedicated to ensuring and promoting excellence in care and research to the benefit of patients affected by rare respiratory diseases.
Articles
- The European Alpha-1 Research Collaboration (EARCO): a new ERS Clinical Research Collaboration to promote research in alpha-1 antitrypsin deficiency
- The Ariane-IPF ERS Clinical Research Collaboration: seeking collaboration through launch of a federation of European registries on idiopathic pulmonary fibrosis
- Where are the gaps in education in the field of rare lung disease? Perspectives from the ERN-LUNG educational programme survey
- Finding the Needle in the Hay Stack: An Open Architecture to Support Diagnosis of Undiagnosed Patients
- SPEF2- and HYDIN-Mutant Cilia Lack the Central Pair–associated Protein SPEF2, Aiding Primary Ciliary Dyskinesia Diagnostics
- Recommendations for travelling with bronchiectasis: a joint ELF/EMBARC/ERN-Lung collaboration
- De Novo Mutations in FOXJ1 Result in a Motile Ciliopathy with Hydrocephalus and Randomization of Left/Right Body Asymmetry
- New Patient-Centric Approaches to the Management of Alpha-1 Antitrypsin Deficiency
- Protocol for Application, Standardization and Validation of the Forskolin-Induced Swelling Assay in Cystic Fibrosis Human Colon Organoids
- Efficacy and safety of azithromycin maintenance therapy in primary ciliary dyskinesia (BESTCILIA): a multicentre, double-blind, randomised, placebo-controlled phase 3 trial
- Registries and collaborative studies for primary ciliary dyskinesia in Europe
- Serum KL‐6 concentrations as a novel biomarker of severe COVID‐19
- Adiponectin and leptin levels in idiopathic pulmonary fibrosis: A new method for BAL and serum assessment
- Patient registries for rare diseases in Germany: concept paper of the NAMSE strategy group
- The Status Quo of Rare Diseases Centres for the Development of a Clinical Decision Support System – A Cross-Sectional Study
- Implementation of EXABO – An Expert Advisory Board for the European Reference Network for Rare Respiratory Diseases
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Details
- Publication date
- 8 February 2021